We’re so glad that you’re interested in getting in touch with us! We’re a small, but dedicated team and love hearing from our community and those interested in learning about or engaging with our work to raise global awareness about the ultra-rare MSL3 (Basilicata-Akhtar) Syndrome.
You can send along questions, comments, messages and stories through our email address, social media or mail them to our P.O. Box.
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We also invite you to join our Facebook Group for families, loved ones and others in the MSL3 Syndrome community.